Links by Condition
Progressive Supranuclear Palsy
Restless Leg Syndrome
Spasmodic Dysphonia/ Spasmodic Torticollis
Spinal Cord Injury
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place
Landover, MD 20785
CHADD is a non-profit parent-based organization formed to better the lives of individuals with attention deficit disorder and those who care for them.
27001 Agoura Road
Calabasas Hills, CA 91301-5104
The ALS Association is the only national not-for-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou Gehrig's disease).
20 Eglinton Avenue W.
Toronto, Ontario M4R 1K8
Toll Free: 1.800.616.8816 (valid only in Canada)
Here you'll find information on the Alzheimer Society, the disease, care, research, news, events, and more.
919 N. Michigan Avenue
Chicago, IL 60611-1676
Toll Free: 800.272.3900
Dedicated to researching the prevention, cures, and treatments of Alzheimer's disease nationwide.
Alzheimer's Disease Education and Referral (ADEAR Center)
P.O. Box 8250
Silver Springs, MD 20907-8250
This site provides information on Alzheimer's disease research, diagnosis, treatment, drugs, clinical trials, and Federal Government programs and resources. The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institutes of Health under the U.S. Department of Health and Human Services.
Family Caregiver Alliance
690 Market Street
San Francisco, CA 94104
Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and other disorders and long-term care concerns. Their site has wonderful features for families, caregivers, professionals, policy makers, and the media.
National Aphasia Association
350 Seventh Avenue, Suite 902
New York, NY 10001
The National Aphasia Association is an organization dedicated to promoting the care, welfare, and rehabilitation of those with aphasia through public education and support of research. The mission of the NAA is to stimulate the development and utilization of resources to help meet the needs of people with aphasia and their families.
American Academy of Otolaryngology- Head and Neck Surgery
One Prince Street
Alexandria, VA 22314-3357
Offers lists of patient leaflets and /or geographical list of physicians.
Benign Essential Belpharospasm Research Foundation, Inc. (BEBRF)
P.O. Box 12468
Beaumont, TX 77726-2468
Referral services, local chapters, support groups, and audio/visual materials.
American Brain Tumor Association (ABTA)
2720 River Road
Des Plaines, IL 60018
Toll Free: 1.800.886.ABTA (1.800.886.2282)
ABTA funds brain tumor research and provides information to patients to make educated decisions about their health care. The ABTA offers printed materials about research and treatment of brain tumors, and provides listings of physicians, treatment facilities, and support groups throughout the country. A limited selection of Spanish-language publications is available.
National Brain Tumor Foundation
414 Thirteenth Street
Oakland, CA 94612-2603
Toll Free: 1.800.934.CURE (2873)
NBTF is a national not-for-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research in better treatment options and a cure for brain tumors.
Children's Brain Tumor Foundation
274 Madison Avenue
New York, NY 10016
A resource guide for parents of children with brain and spinal cord tumors.
PO Box 1804
Alexandria, VA 22313
International Brain Injury Association
Brain Injury Association Inc.
105 North Alfred Street
Alexandria, VA 22314
To find your nearest Brain Injury Association State Office or Affiliate visit: www.biausa.org/States.htm
The mission of the Brain Injury Association is to create a better future through brain injury prevention, research, education, and advocacy. Their site offers listings of publications, conferences, programs, support groups, and more. They also have a site dedicated to children.
Brain Trauma Foundation
523 East 72nd Street
New York, NY 10021
National Center for Injury Prevention and Control
4770 Buford Highway NE
Atlanta, GA 30341
Facts about brain injury.
The Arc of the United States
(formerly Association for Retarded Citizens of the United States)
500 East Border Street
Arlington, TX 76010
The Arc is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
The Epilepsy Foundation
(formerly the Epilepsy Foundation of America)
4351 Garden City Drive
Landover, MD 20785
Local Phone: 301.459.3700
Toll Free: 800.EFA.1000
This is a national organization that works for people affected by seizures through research, education, advocacy, and service.
Guillain-Barre Syndrome Foundation International
P.O. Box 262
Wynnewood, PA 19096
Available services include the following:
Visits to patients by recovered persons
Comprehensive booklet, "GBS, An Overview for the Layperson"
Poster, announcing services
Patient assistance by local chapters
List of chapters worldwide
International Educational Symposia for the medical community and general public
American Council for Headache Education (ACHE)
19 Mantua Road
Mt. Royal, NJ 08061
The American Council for Headache Education (ACHE) is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headache. Their goals are to empower headache sufferers through education, and to support them by educating their families, employers, and the public in general. We advocate individualized treatments, which combine the best of traditional medicine, alternative medicine, drug, and non-drug therapies.
National Headache Foundation
428 W. St. James Place
Chicago, IL 60614-2750
Toll Free: 1.888.NHF.5552
The World Wide Web Headache Information Center offers membership availability, topic sheets for specific headache conditions, a list of educational materials for purchase, information about headache support groups, sample articles from the NHF Head Lines, and award-winning bi-monthly newsletter.
Huntington's Disease Society of America
505 Eighth Avenue
New York, NY 10018
Toll Free HD Information Line: 1.800.345.HDSA
HDSA's mission is to:
Promote and support research to find a cure for HD
Help those affected by the disease and their families
Educate the public and health care professionals about HD
American Lyme Disease Foundation
Mill Pond Offices
293 Route 100
Somers, NY 10589
Lyme Disease: A Patients Guide, American College of Physicians American Society of Internal Medicine
Multiple Sclerosis Association of America (MSAA)
706 Haddonfield Road
Cherry Hill, NJ 08002
Toll Free: 1.800.LEARN.MS
The MSAA offers an educational video for newly diagnosed individuals.
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Toll Free: 800.344.4867 (FIGHT MS)
The National Multiple Sclerosis Society is dedicated to ending the devastating effects of Multiple Sclerosis (MS). Acquire news updates, information about the organization, local resources, and MS links.
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718
Toll Free: 800.572.1717
The Muscular Dystrophy Association is the source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.
Myasthenia Gravis Foundation of America (MGFA)
1821 University Ave W
St. Paul, MN 55104-2897
Phone: 800.541.5454 or 651.917.6256
This national volunteer health agency seeks to find a cure for myasthenia gravis and related disorders of the neuromuscular junction and to help people affected by them. Their site provides news, research updates, patient-service information, and links.
8855 Annapolis Road
Lanham, MD 20706-2924
Toll Free: 800.942.6825
NF, Inc. is an organization made up of independent state and regional chapters, providing support and services to NF families.
2700 Chestnut Street
Chester, PA 19013-4867
Toll Free: 1.800.606.CMTA (2682)
The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research, and ultimately the treatment and cure of CMT.
The Neuropathy Association
60 E. 42nd Street
New York, NY 10165
The Neuropathy Association is a public, nonprofit organization which was established by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves.
Obsessive-Compulsive Foundation (OCF)
337 Notch Hill Road
North Branford, CT 06471
OCF funds research, conducts annual membership conferences, publishes a bi-monthly newsletters, provides a free inquiry packet with information on treatment providers, support groups, and other materials.
American Chronic Pain Association, Inc. (ACPA)
P.O. Box 850
Rocklin, CA 95677
ACPA Mission Statement:
* To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
* To raise awareness about issues of living with chronic pain among the health care community, policy makers, and the public at large.
American Parkinson Disease Association
1250 Hylan Boulevard
Staten Island, NY 10305
Toll Free: 800.223.2732
National Parkinson Foundation, Inc.
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Toll Free: 800.327.4545
The organization supports research; conducts clinical trials; and provides physical, occupational, speech, and neuropsychological therapies. Learn about Parkinson's disease-related news and events. The online library also holds publications and articles.
Parkinson's Disease Foundation
710 West 168th Street
New York, NY 10032-9982
Toll Free: 800.457.6676
Educational Office (312)733-1893
The Foundation provides information about Parkinson's disease itself as well as related organizations, research centers, and events. You can also read the latest Parkinson's news or join the online email list.
The Movement Disorder Society
555 East Wells Street, Suite 1100
Milwaukee, WI 53202-3823 USA
International professional society of clinicians, scientists, and other healthcare professionals who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders and abnormalities in muscle tone and motor control.
Parkinson's Action Network
840 Third Street
Santa Rosa, CA 95404
Toll Free: 800.850.4726
The Parkinson's Action Network was founded in 1991 with a mission to provide a voice for the Parkinson's community. Since that time, the Network's central objective continues to be to promote a level of research support sufficient to produce effective treatments and a cure.
Rehabilitation Institute of Chicago
345 East Superior Street
Chicago, IL 60611
American Academy for Cerebral Palsy and Development Medicine
555 East Wells, Suite 1100
Milwaukee, WI 53202
Eunice Kennedy Shriver National Institute of
Child Health and Human Development (NICHD)
31 Center Drive
Building 31, Room 2A32
Bethesda, MD 20892.2425
Phone: 800.370.2943 (TTY: 888.320.6942)
Society for Progressive Supranuclear Palsy, Inc. (SPSP)
Suite 515, Woodholme Medical Building
1838 Greene Tree Road
Baltimore, MD 21208
The goal of this website is to bring current information on progressive supranuclear palsy (PSP) to persons with PSP, their families, and their caregivers.
Restless Legs Syndrome Foundation
4410 19th Street NW
Rochester, MN 55901-6635
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) agency that provides information about RLS; helps develop support groups; supports research to find better treatments and, eventually, a definitive cure; educates physicians and patients about RLS; and publishes a quarterly newsletter known as NightWalkers.
American Academy of Sleep Medicine
6301 Bandel Road NW
Rochester, MN 55901
American Sleep Apnea Association
1424 K Street NW
Washington, DC 20005
The American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.
National Sleep Foundation
1522 K Street, NW
Washington, DC 20005
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy.
750 Third Avenue, 6th Floor
New York, NY 10017
SleepChannel is developed and monitored by leading sleep specialists. You can always be assured of finding the most up-to-date, medically accurate information available on the web.
National Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Chicago, IL 60601-1905
Toll Free: 800.377.DYST
Dedicated to serving the needs of persons affected with dystonia and their families, the Foundation has grown from a small family-based foundation to a member-driven organization of close to 25,000 persons.
National Spasmodic Torticollis Association (NSTA)
9920 Talbert Ave
Fountain Valley, CA 92708
The National Spasmodic Torticollis Association (NSTA), a California nonprofit organization, provides support, referrals, and information for patients and family members living with ST. The organization offers a variety of valuable services.
The University of Alabama at Birmingham Spinal Cord Injury Model System
529 Spain Rehabilitation Center
1717 6th Avenue South
Birmingham, AL 35249-7330
Acute Stroke Toolbox
The Brain Attack Coalition is a group of professional, voluntary and governmental entities dedicated to reducing the occurrence, disabilities and death associated with stroke. The goal of the Coalition is to strengthen and promote the relationships among its member organizations in order to help people who have had a stroke or are at risk for a stroke.
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Toll Free: 800.AHA.USA.1
Stroke Connection: 800.553.6321
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.
National Institute of Neurological Disorders and Stroke
31 Center Drive MSC 2540
Building 31, Room 8A06
Bethesda, MD 20892-2540
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.
National Stroke Association
96 Inverness Drive East
Englewood, CO 80112-5112
Toll Free: 1.800.STROKES or 1.800.787.6537
National health care organization provides site for stroke survivors and their families detailing stroke prevention, treatment, rehabilitation, and research.
Recovering from a Stroke
by Dr. Bruce Dobkin
American Tinnitus Association
P.O. Box 5
Portland, OR 97207-0005
Toll Free: 800.634.8978
Education - Advocacy - Research - Support..."To promote relief, prevention, and the eventual cure of tinnitus for the benefit of present and future generations."
Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.
The Tourette Syndrome Association, Inc.
Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder.
American Academy of Neurology
1080 Montreal Avenue
St. Paul, MN 55116
Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue
New York, NY 10151
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education.
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians, and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.
The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.
National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages.
Neurosciences on the Internet
Neuroguide.com was first published in 1994. The original site contained an index of neuroscience resources available on the Internet including neurobiology, neurology, neurosurgery, psychiatry, psychology, cognitive science sites and information on human neurological diseases. Given the explosive growth and constantly changing nature of the Web, it is no longer possible to maintain a comprehensive and up-to-date list of such resources manually.